He will enjoy a few days this week of feeling better but by the end of the week, his blood counts will be dropping and he will start feeling really tired again! So don't let the couple of good days trick you!! Even for us, it's so hard when we get a few days to remember it's only a few days!! And when his blood counts drop, crazy things start happening at night! At first he didn't believe me...but now he does!! If I start talking to him and engaging him, then he will wake up and kinda remember the next morning. Someone asked me what crazy things happen?? Well, here are some examples...
- He removes books off the bookshelf in the middle of the night because he is looking for his covers.
- He rummages through his walker basket and wheelchair seat looking for needles. When asked what kind of needles he replies the ones with drugs in them. LOL!! He was remembering when he gave himself daily injections.
- He is always trying to get up and go somewhere or do something. And he has a good reason for whatever it is to get out of bed.
- He is always fiddling with his catheter bag and moving it around. One unfortunate night, he somehow unplugged his bag so the contents of the bag for the entire night soaked into our bedroom carpet. Yes, this was by far the worst extravaganza we have had.
So...we will enjoy a few decent days...before blood counts drop and we enter the season of crazy nights and no sleep! Thanks for joining us on our journey! And thanks for praying for us.
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